Category: Uncategorized
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An honest update
*this blog post focuses mainly on mental health and CPTSD a physical health update will come soon* I haven’t written a blog post in a while. I’ve wanted to, but last year was a year full of healing and challenges. Something that is important to me is using my voice, sharing my story, and spreading…
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Vascular Compressions Awareness Month
December is Vascular Compressions awareness month. This is an important month for me. As you know I have MALS which is a vascular compression and am currently recovering from my open abdominal MALS surgery. What most of us don’t realize, is how much power we have by having the internet at our disposal. I have…
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An open letter to my GI doctor..
I wanted to reach out and share a few thoughts that have been weighing on me. This is in no way sent with any malice or ill intent. I respect your long years of hard work and dedication to become a doctor. I know there was a reason you continued throughout the incredibly challenging school, boards,…
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MALS: Post-Op Appointment
817, what a number. 817 is the number patient I am that Dr.Hsu has helped. A testimony to him as a surgeon. One of the only surgeons in the area to take the chance to help complex patients like myself. To him thats a huge accomplishment. To me it is too. The number 817 “carries…
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MALS: Discharge Day
This will be a vulnerable post read at your own discretion🫶🏻 TW: scar, iv, possible ED, mental health Today was a big day, I was discharged from the hospital! The 2nd step to my long journey of healing. Open abdominal surgery was definitely not something I anticipated needing at 25- but man am I grateful…
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MALS: 3 days Post-Op
This will be a quick update! Surgery went well and was successful. Dr.Hsu informed us that my diaphragm was incredibly low. Not only was it pushing on my ligament but also my stomach and liver which then resulted in my intestines being pushed on. Additionally my nerves were severely damaged as well as surrounding tissue.…
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More about MALs..
Welcome back. I wanted to take some time to put some information about MALs out there. Im going to provide some basic info and leave links at the bottom of the post for you to check out for more information. What is MALs? MALs stands for Median Arcuate Ligament Syndrome. There are currently two known…
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MALs
I have been putting off writing this blog post for awhile. I have started it a few times and only got about a sentence in before I stopped. The past 6 months have been the hardest 6 months of my entire life this far. So here it is… MALS. Median Arcuate Ligament Syndrome. That is…
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Where I’m at..
Hey guys, it’s been awhile it’s time for an update. So things have been kind of hard..really hard. My stomach pain has gotten so bad most nights I’m curling up in a ball and it’s getting harder to get myself to eat because of the pain. I went from an only soft foods diet to…
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Coaching with Chronic Illnesses
Sports have been a huge part of my life for pretty much my entire life. I was figure skating before I could walk, throwing a softball by the time I was 4 and I have always been involved in sports whether it was playing or coaching or both at the same time. Playing sports is…
Chronic Illness Chronicles 